Summer Update

It’s been two months since we returned from our last trip to NAPA, and as we enter the summer we thought it time to send an update about Sacha. He started nursery this March, and since then he has picked up just about every bug in Brighton—often giving them to us too—which has meant that…

After his second trip to NAPA, Sacha is walking!

We got back from our second trip to NAPA last weekend, but held off sending an update as we were anticipating a leap from Sacha. We spent three weeks working with a team of therapists in suburban Boston, helping Sacha to strengthen up and develop the relevant neural connections, in all the areas necessary for…

NAPA intensive #2: first day

  It has been 3 months since we last posted about Sacha. These were unavoidably some of the busiest months of our working lives, and on top of our jobs it was all we could do to manage Sacha’s many appointments and keep his daily therapies going. Every morning we have given him 1–2 hours…

Sacha in the Argus

Sacha is on the front page of the Argus today, as we count down to the final deadline of our crowdfunder. A few details are wrong, such as a caption on the photo of NAPA physiotherapist Erin working with Sacha which identifies her as Sacha’s mum! If it had been up to us we would…

Painting for Sacha from La Rosa!

After a somewhat grim appointment with a geneticist first thing this morning, I was cheered up by the contribution of this beautiful painting by La Rosa to Sacha’s campaign, via the wonderful Jackie Chase at Under the Bridge Studios. It doesn’t cease being extraordinarily moving to find such support—it completely reconfigures one’s sense of humanity….