Notes on oromotor control

If I had the detachment of another person who wasn’t Sacha’s dad, I would probably find something fascinating in what his difficulties might reveal. There is a lot that is profound in child development, and one sees that all the more clearly when it cannot proceed along the typical paths. One can see why Piaget…

On “developmental delay”

These days the word “retarded” is a simple term of abuse. Not so long ago it was a relatively “politically correct” term for intellectual disability, which replaced another set of nominally scientific categorisations, which themselves had become terms of abuse: idiot, imbecile, moron. These terms of course persist to this day as acceptable language, rather…

Autumn 2020 update

It’s been ages since we posted an update about Sacha. A lot has been happening in our lives—and, of course, the world—and it has been hard to find a moment to take stock. In quite dramatic circumstances—amid lockdown and a possible family Coronavirus infection, and several weeks early—on April 26 Sacha’s little sister, Niko, arrived…

January update: Sacha can now crawl!

Are you a runner? We’re looking for people to join “Team Sacha”, either to run the Hastings Half Marathon with us on 29 March this year or to take part in other events. More below. Have you donated to Sacha anonymously via JustGiving, without meaning for it to be totally anonymous? We have no way…

Song for Sacha

For us, one of the big “stories” of our struggles with Sacha’s condition, and of all the therapies and incredible support he has had, is how Jackie Chase at Under the Bridge studios in Brighton has been there for Sacha and for all of us as a family. Jackie is one of those rare people…