Last push to cover Sacha’s next round of therapy!

Sacha’s first crowdfunded intensive intervention at the NAPA Center got him standing for the first time. His second got him walking. The next round starts next week (we’re almost there, and currently doing a final push to cover it). What can we hope for this time? To most people who know Sacha, he’s a delightful…

Help Sacha learn to play!

It has been an extraordinarily successful year in terms of Sacha’s development. With his crowdfunded therapies we managed to get him from a completely static, largely disengaged state to being able to walk around for himself, and this has radically changed his experience of the world. Yet there remain significant ways in which that missing…

Summer Update

It’s been two months since we returned from our last trip to NAPA, and as we enter the summer we thought it time to send an update about Sacha. He started nursery this March, and since then he has picked up just about every bug in Brighton—often giving them to us too—which has meant that…

After his second trip to NAPA, Sacha is walking!

We got back from our second trip to NAPA last weekend, but held off sending an update as we were anticipating a leap from Sacha. We spent three weeks working with a team of therapists in suburban Boston, helping Sacha to strengthen up and develop the relevant neural connections, in all the areas necessary for…

NAPA intensive #2: first day

  It has been 3 months since we last posted about Sacha. These were unavoidably some of the busiest months of our working lives, and on top of our jobs it was all we could do to manage Sacha’s many appointments and keep his daily therapies going. Every morning we have given him 1–2 hours…