Autumn 2020 update

It’s been ages since we posted an update about Sacha. A lot has been happening in our lives—and, of course, the world—and it has been hard to find a moment to take stock. In quite dramatic circumstances—amid lockdown and a possible family Coronavirus infection, and several weeks early—on April 26 Sacha’s little sister, Niko, arrived…

January update: Sacha can now crawl!

Are you a runner? We’re looking for people to join “Team Sacha”, either to run the Hastings Half Marathon with us on 29 March this year or to take part in other events. More below. Have you donated to Sacha anonymously via JustGiving, without meaning for it to be totally anonymous? We have no way…

Song for Sacha

For us, one of the big “stories” of our struggles with Sacha’s condition, and of all the therapies and incredible support he has had, is how Jackie Chase at Under the Bridge studios in Brighton has been there for Sacha and for all of us as a family. Jackie is one of those rare people…

Sacha’s third round of intensive therapy

It’s a week since we returned from Sacha’s third intensive at the NAPA Center. We’ve held back on writing it up until now partly to see how he would integrate what he has learned, as this period after an intensive can be a crucial one, when the big shifts actually occur. In the days immediately…

Sacha’s first day in the Neurosuit!

We’ve just arrived back at the NAPA Center Los Angeles to start Sacha’s third NAPA intensive intervention. This time he’s finally big enough to be able to wear the NeuroSuit, which is a key part of NAPA’s pediatric therapy programme, and this is going to play a central part in his treatment over the next…