NAPA intensive #2: first day

  It has been 3 months since we last posted about Sacha. These were unavoidably some of the busiest months of our working lives, and on top of our jobs it was all we could do to manage Sacha’s many appointments and keep his daily therapies going. Every morning we have given him 1–2 hours…

Sacha in the Argus

Sacha is on the front page of the Argus today, as we count down to the final deadline of our crowdfunder. A few details are wrong, such as a caption on the photo of NAPA physiotherapist Erin working with Sacha which identifies her as Sacha’s mum! If it had been up to us we would…

Painting for Sacha from La Rosa!

After a somewhat grim appointment with a geneticist first thing this morning, I was cheered up by the contribution of this beautiful painting by La Rosa to Sacha’s campaign, via the wonderful Jackie Chase at Under the Bridge Studios. It doesn’t cease being extraordinarily moving to find such support—it completely reconfigures one’s sense of humanity….

Adulthood as disability

A friend asked if I could explain further what Waldon means by his claim that “adulthood may be interpreted as a retarded stage of childhood”, which I quoted in my last post. I’m no expert on Waldon, but I’ve read through enough Waldon-related material now to think that I can venture an “amateur” explanation without…

Waldon

I’ve been digging into the origins of the therapy that we have been giving Sacha for several hours a day at home for the last few months, in the attempt to understand better our own practice. Our introduction to this approach came via the Parent Infant Clinic in London, who advocate “scaffolding” for the developmentally-delayed…