Song for Sacha

For us, one of the big “stories” of our struggles with Sacha’s condition, and of all the therapies and incredible support he has had, is how Jackie Chase at Under the Bridge studios in Brighton has been there for Sacha and for all of us as a family. Jackie is one of those rare people…

Sacha’s third round of intensive therapy

It’s a week since we returned from Sacha’s third intensive at the NAPA Center. We’ve held back on writing it up until now partly to see how he would integrate what he has learned, as this period after an intensive can be a crucial one, when the big shifts actually occur. In the days immediately…

Sacha’s first day in the Neurosuit!

We’ve just arrived back at the NAPA Center Los Angeles to start Sacha’s third NAPA intensive intervention. This time he’s finally big enough to be able to wear the NeuroSuit, which is a key part of NAPA’s pediatric therapy programme, and this is going to play a central part in his treatment over the next…

Last push to cover Sacha’s next round of therapy!

Sacha’s first crowdfunded intensive intervention at the NAPA Center got him standing for the first time. His second got him walking. The next round starts next week (we’re almost there, and currently doing a final push to cover it). What can we hope for this time? To most people who know Sacha, he’s a delightful…

Help Sacha learn to play!

It has been an extraordinarily successful year in terms of Sacha’s development. With his crowdfunded therapies we managed to get him from a completely static, largely disengaged state to being able to walk around for himself, and this has radically changed his experience of the world. Yet there remain significant ways in which that missing…