Last push to cover Sacha’s next round of therapy!

Sacha’s first crowdfunded intensive intervention at the NAPA Center got him standing for the first time. His second got him walking. The next round starts next week (we’re almost there, and currently doing a final push to cover it). What can we hope for this time? To most people who know Sacha, he’s a delightful…

Help Sacha learn to play!

It has been an extraordinarily successful year in terms of Sacha’s development. With his crowdfunded therapies we managed to get him from a completely static, largely disengaged state to being able to walk around for himself, and this has radically changed his experience of the world. Yet there remain significant ways in which that missing…

After his second trip to NAPA, Sacha is walking!

We got back from our second trip to NAPA last weekend, but held off sending an update as we were anticipating a leap from Sacha. We spent three weeks working with a team of therapists in suburban Boston, helping Sacha to strengthen up and develop the relevant neural connections, in all the areas necessary for…

NAPA intensive #2: first day

  It has been 3 months since we last posted about Sacha. These were unavoidably some of the busiest months of our working lives, and on top of our jobs it was all we could do to manage Sacha’s many appointments and keep his daily therapies going. Every morning we have given him 1–2 hours…

Sacha in the Argus

Sacha is on the front page of the Argus today, as we count down to the final deadline of our crowdfunder. A few details are wrong, such as a caption on the photo of NAPA physiotherapist Erin working with Sacha which identifies her as Sacha’s mum! If it had been up to us we would…