IMG-20180916-WA0002This is Sacha. He’s one and a half and already a bit of a character. He finds the world as a whole pretty funny, and has done since he was small. He was born with a distinctive shock of thick brown hair, and loves bashing a bongo and anything else musical.

He has a rare genetic disorder called 2q37 deletion syndrome. This means that he is likely to grow up with both cognitive disabilities and physical difficulties.

But DNA need not always be destiny, and if one intervenes early enough in a child’s development it is possible to substantially improve prospects.

Sacha’s parents and a team of volunteers are thus fundraising for early intervention. The first goal is to cover intervention for Sacha, but we also hope to be able to support other babies in similar situations.